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Welcome to the CRPS/RSD Guestbook!

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There are currently 100 messages.
There have been 1828 visits since 2012-07-30
This page was last accessed on 2019-08-13


Message Number: 100 - Saturday, August 3, 2019 11:23:51 CDT
[IP = 70.170.78.46] -
Posted From: United States - us.gif
Name:  Sandy Hawkins
Like to receive our monthly newsletter?:  yes
Year your RSD began?:  2016
Comments:

My pain began in 2016, maybe even earlier now that I think about it, as nerve pain in my right foot that came and went. In 2017 the pain never left. I have had 3 different back fusions, both hips replaced, Left hip revision twice due to the DePuy recall. As I looked to Dr. for help, it was always thought it was a hardware problem at L5/S1, and after 2 years of "Gee, I don't see a problem", and several different doctors, I finally was diagnosed with CRPS. I am in constant pain and have drop foot which makes walking a chore. I am determined to try everything I can to stop this disease at my foot and learn more about it.


Message Number: 99 - Private Message

Message Number: 98 - Sunday, March 17, 2019 07:59:44 CDT
[IP = 24.228.220.211] -
Posted From: United States - us.gif
Name:  Elizabeth Dwyer
Like to receive our monthly newsletter?:  Yes
Year your RSD began?:  2018
Comments:

My daughter is suffering from CRPS of the right foot which was triggered after a car accident damaged her limb.


Message Number: 97 - Monday, October 15, 2018 18:20:56 CDT
[IP = 74.197.212.191] -
Posted From: United States - us.gif
Name:  Ironald
Like to receive our monthly newsletter?:  No
Year your RSD began?:  2013
Comments:

I think I'm really going to like this site


Message Number: 96 - Friday, August 24, 2018 16:23:56 CDT
[IP = 64.223.238.130] -
Posted From: United States - us.gif
Name:  Elene Dohner
Like to receive our monthly newsletter?:  yes
Year your RSD began?:  1999
Comments:

I developed RSD in my left arm when I shattered my wrist falling off a ladder in 1999. And last year I had reverse shoulder surgery on my right shoulder and they were suppose to do a nerve block, so the RSD didn't spread, but it did not work and I now have it in both arms




Message Number: 95 - Wednesday, July 25, 2018 09:49:53 CDT
[IP = 173.235.35.138] -
Posted From: United States - us.gif
Name:  Brenda E. Hocutt
Like to receive our monthly newsletter?:  yes
Year your RSD began?:  1998
Comments:

I was receiving your newsletter for a long time, but recently realized that I haven't seen a new newsletter in a very long time. I trust you are well, and so busy you just don't have time to prepare the newsletter any longer. Blessings to you!


Message Number: 94 - Thursday, May 3, 2018 16:40:22 CDT
[IP = 69.247.58.187] -
Posted From: United States - us.gif
Name:  Robyn Kyger
Like to receive our monthly newsletter?:  Yes
Year your RSD began?:  2017
Comments:

Very interested to keep informed on any treatments that are working for people with CRPS.


Message Number: 93 - Private Message

Message Number: 92 - Sunday, March 25, 2018 10:23:28 CDT
[IP = 173.174.6.167] -
Posted From: United States - us.gif
Name:  Georgia Bargmann
Like to receive our monthly newsletter?:  yes
Year your RSD began?:  2013
Comments:

I have CRPS in my left calf /ankle/foot. I've used hydrocodone and kratom for the pain. Right now I'm trying CBD. If that doesn't help, and it doesn't seem to be helping, I'm going to explore ketamine infusions.


In 2013 I broke the left tibia in five places. After it was repaired I developed compartment syndrome, which damaged nerves in my leg and foot. After that I developed the CRPS.


Message Number: 91 - Private Message