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There are currently 240 messages.
There have been 7605 visits since 2012-08-14
This page was last accessed on 2020-07-08

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Message Number: 240 - Thursday, June 4, 2020 09:58:26 PDT
[IP = 99.137.69.183] -
Posted From: United States - us.gif
Name:  Pam
Where are you from::  Texas
Comments:

Hi, my name is Pam. I am 62 years old and was diagnosed with breast cancer in my left breast on Feb. 4 of this wild 2020 year! I had a lumpectomy on March 13(just before SPRING BREAK). Yes I still teach visually impaired students, on a part time 'basis. I'm also retired! Confusing, I know!
I had ductal cell carcinoma that was found in my mammogram, which I had skipped for 3 years. Shame, shame, I know! During the surgery my doctor found a small portion of a fast growing carcinoma but he got great margins on all of it. Because I was HER 2 NEGATIVE I did not have to have chemo! Praise God! BUT my radiology oncologist decided since I did have the aggressive kind, he wanted to put me on a stronger radiation for 15 days. I thought.....piece of cake.
To make a long story short, on day 8 of radiation they sent me directly to the ER. I could not think, I could not follow instructions, I was running fever, BP was high, so they immediately admitted me. I did not have Covid-19, I did have the horrible test. After 5 days of being alone in the hospital, they finally figured out that I had pneumonia in my LEFT lung. After 2 iV bags of antibiotics, I was back to normal. They said the radiation caused it. Anyway, went home, finished my radiation last week. I'm really weak but they tell me after all I went through, it's totally normal! I know God was in all of this because I did not want to get this mammogram. My kids insisted! I'm so thankful I did! I thank God everyday for His grace and love!

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Message Number: 239 - Monday, April 27, 2020 04:53:30 PDT
[IP = 73.54.121.61] -
Posted From: United States - us.gif
Name:  Judy F.
Where are you from::  Estero, FL
Comments:

I have Breast duct carcinoma. Stage 1. I'm going for radiation now. Starting my second week.

Wondering how burned I will be.

Much scar tissue after surgery. This is my second time. Has this 4 years ago.

Need Estrogen suppression drugs after this. Feeling scared and angry at times.

Emotional roller coaster!!

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Message Number: 238 - Saturday, April 18, 2020 10:50:52 PDT
[IP = 97.102.137.128] -
Posted From: United States - us.gif
Name:  LisaT
Where are you from::  Daytona Beach
Comments:

Newbie, just diagnosed. I am looking for some emotional support and help with direction of care information. I'm not sure what you're supposed to put here. I have just been knocked for a loop with this diagnosis and am just numb. I was diagnosed with DCIS, left side, which, I am told, in and of itself is not a devistating diagnosis. Unless you are the one diagnosed. I saw a surgeon, I guess he is ok. He is the Chief Surgeon at the hospital and has great reviews. My PCP was thrilled that I got assigned to him. He is pushing whole breast radiation. I went to see the Radiologist, and asked him about the SAVI Brachy therapy (5 days 2 times a day) vs the traditional whole breast (30 treatments for 6 weeks) and talked about my reservations of the later. One being damage to my heart, lungs or ribs. Another being the number of women that have posted (in another forum) their diagnosis of DCIS treated with lumpectomy and whole breast radiation and the recurrance of DCIS then having to have a mastectomy because you can't radiate more than once. He agreed and said I was a canidate for the SAVI 5 days twice a day and done.

He spoke to the surgeon and the Navigator, who I never spoke to or met. The surgeon's office called to set my appointment and notified me that they no longer do SAVI and haven't for 3 years and they don't have the device to do the SAVI. Wouldn't the surgeon have said that to the Radiologist? And when I asked why, she said that they do the Interop radiation now, which I am not a canidate for so that doesn't help me at all. When I asked if I need to find another surgeon, she said no, she "guess's" she will just have to do some work to find one. what???? Then I finally spoke to the Navigator. Her introduction to me was, Hi, I am Jen. Now what do you want from me? WHAT??? I said I don't know who she is or what she does so how would I know what I need her help with. It was a very quick conversation. The next conversation was a couple days later when I hadn't heard back from the surgeons office. I asked her about finding a different surgeon and she said it wouldn't make a difference because no one in my area does them anymore. Again, what???? You would think the Radiologist would know these things. She said she advised the surgeons office to see if she can locate a sales rep and get a SAVI delivered.

So, I'll call the Radiologist on Monday and ask some questions about this. In the mean time I don't feel very comfortable with the way things are moving and my lack of control along with the lack of communication with me. (Someone made an appointment for me with the Radiologist in 4 weeks and never told me. I found out by setting up my Patient Portal. It was listed there) I can't find anyone outside this group unless I go over an hour away. I am almost tempted to just get a hotel and do just that. Then we have this Covid 19 and all the hotels are closed.

I am so depressed at this point. My husband is usless. Don't get me wrong, he is a good man, he just doesn't know how to deal with illness and is not good at giving comfort. (Military). His reaction is to build or fix things. So in the past 6 weeks I have a new roof, my master bath is gutted and slowly being renovated, and the hutch in my dining room is half torn down with plans to gut my kitchen. Not to mention he wants to buy a van or truck. All this with no thought to what this diagnosis and treatment is going to cost us out of pocket.

So, silver linings? I already work from home, Medical Coding and my husband is still working. My hours have been cut, but we will be fine. we just have to tighten our belts a bit. I have been squirreling away money for these renovations so that isn't impacting our normal expenses. I won't have to have too much time off and my job is not strenous I can continue working thru this and just take a week off for the radiation, assuming they can find the needed device.

I was wondering why the Comments were listed at 6000 characters. It doesn't take long to get there.

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Message Number: 237 - Saturday, February 29, 2020 10:42:27 PDT
[IP = 162.210.170.97] -
Posted From: United States - us.gif
Name:  Anita Edwards
Where are you from::  Moncks Corner, SC
Comments:

newbie. Newly diagnosed with stage I. Invasive lobular carcinoma, scheduled for lumpectomy March 6, then 3-6 weeks of radiation. Pretty nervous about results of lymph node biopsy, but trying hard to stay positive.

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Message Number: 236 - Wednesday, January 15, 2020 13:57:03 PDT
[IP = 66.220.177.1] -
Posted From: United States - us.gif
Name:  Susan Folds
Where are you from::  Moultrie, GA
Comments:

I am on my last round of chemo. NOw for surgery. I will be having a double mastectomy. Now I have to decide if I want to have reconstruction. I am 60 years old. Married with children and rndchildren. I don't ever plan to re-marry. I just wanted to know what everuone thinks. Pros & Cons. Worth it or Not.

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Message Number: 235 - Saturday, September 7, 2019 21:55:34 PDT
[IP = 199.167.119.12] -
Posted From: Canada - ca.gif
Name:  BellasMama
Where are you from::  Canada
Comments:

I survived BC in 2008; recent mammo has raised alarm it may be back... any chance it's a false alarm? I am so worried!

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Message Number: 234 - Wednesday, August 7, 2019 06:48:50 PDT
[IP = 107.77.222.170] -
Posted From: United States - us.gif
Name:  BB
Where are you from::  Houston TX
Comments:

I had my bi-lateral mastectomy two weeks ago. I had one lymph node out of four removed and tested that showed cancer. Now my surgeon wants me to have ALL lymph nodes removed on the side that has cancer. I have an appointment with my radiation oncologist on Monday. Can anyone tell me how it feels after having all lymph nodes removed? Thank you!

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Message Number: 233 - Friday, December 14, 2018 06:07:39 PDT
[IP = 173.48.129.66] -
Posted From: United States - us.gif
Name:  Carrie
Where are you from::  Boston Ma
Comments:

I am new to this board. I am having radiation treatment for breast cancer post lumpectomy and having significant difficulty with post radiation breast pain. I’m here hoping to get suggestions for discomfort. Thank you

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Message Number: 232 - Saturday, August 11, 2018 19:22:46 PDT
[IP = 67.185.178.175] -
Posted From: United States - us.gif
Name:  Dannie
Where are you from::  Monroe WA
Comments:

Lookiny for info on dealing with radiation and pains after surgery

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Message Number: 231 - Friday, June 1, 2018 17:14:38 PDT
[IP = 50.21.145.34] -
Posted From: United States - us.gif
Name:  Kaye Baldwin
Where are you from::  Oneonta, AL
Comments:

Just found out I will be having Chemo. Nervous about whole process

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