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Welcome to the CRPS/RSD Guestbook!


There are currently 220 messages.

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Message Number: 220 - Private Message

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Message Number: 219 - Wednesday, April 12, 2017 06:32:01 CDT
[IP = 94.0.159.72] -
Posted From:United Kingdom
Name:  Angela Ming
Like to receive our monthly newsletter?:  yes
Year your RSD began?:  1999
Comments:

I had a RTA in 1999 broke my neck, arm, ribs, on breaking my arm the bone severed the nerves, leaving me with RSD in this limb. The first year was horrendous even a draft would cause me pain, I have managed to learn to live with this after numerous medical interventions.

Today 18 years later, I now have it all through my body which I am finding it difficult to live with. I was on 180mg of MST x 3 times a day, Oramorph, Fentinel Patches plus other stupid meds. I had weaned myself off these as I accidently overdosed. I went back on them last year but again I have weaned myself off them. I take no pain meds now as I am too scared of the addiction.

This is a debilitating illness, I detest having it, especially now with it being everywhere. When I sit my skin is sore, when I move my bones ache, My legs and hands are continuosly cold although I myself are warm.

Any help would be greatly appreciated.

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Message Number: 218 - Private Message

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Message Number: 217 - Monday, March 20, 2017 14:28:33 CDT
[IP = 104.171.208.72] -
Posted From:
Name:  Rebecca Schlueter
Like to receive our monthly newsletter?:  yes
Year your RSD began?:  2014, my husband not me.
Comments:

My husbands RSD started 2/2014. He went from being active/healthy barge worker, hard manual labor. To now almost completely wheelchair/bedbound. I am trying to research any treatment options that might at least get his chronic pain under control. We are in middle TN and there is very limited options. Vanderbilt can not even help.

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Message Number: 216 - Saturday, March 4, 2017 05:19:37 CDT
[IP = 178.162.209.232] -
Posted From:Germany
Name:  ‚ÄčInga Peters
Like to receive our monthly newsletter?:  NO
Year your RSD began?:  1994
Comments:

Realy nice, thank you so much for all of this.

hv.inga.peters@versanet.de

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Message Number: 215 - Sunday, February 19, 2017 21:40:26 CDT
[IP = 107.205.65.64] -
Posted From:
Name:  Linda Jo
Like to receive our monthly newsletter?:  yes
Year your RSD began?:  2013
Comments:

Suffered hand injury at work as a piano accompanist. Have been unable to do that job due to the pain since the injury. Symptoms go from middle to pinkie fingers into the elbow; fine motor skills in those three fingers is VERY limited. Also limitation in movement in shoulder probably due to limited use of right hand (lack of use of hand means lack of use into shoulder which means weakness in the shoulder...).

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Message Number: 214 - Private Message

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Message Number: 213 - Private Message

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Message Number: 212 - Saturday, February 18, 2017 20:19:16 CDT
[IP = 108.238.234.16] -
Posted From:United States
Name:  Rebecca Badendick
Like to receive our monthly newsletter?:  Yes
Year your RSD began?:  2001
Comments:

I would like to subscribe to your newsletter. I have had RSD for many years, and yet, there is still very little known about this disease.

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Message Number: 211 - Saturday, February 18, 2017 11:09:08 CDT
[IP = 174.219.15.192] -
Posted From:United States
Name:  Lorraine OReilly
Like to receive our monthly newsletter?:  Yes
Year your RSD began?:  2014
Comments:

Hi, thank you for the great resources! I ended up with CRPS after aquilles tendon surgery! I am now getting ready for my third aquilles tendon surgery! Third times a charm I guess! Looking forward to receiving the great information!

Lorraine

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