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There are currently 221 messages.

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Message Number: 221 - Thursday, August 3, 2017 20:17:28 CDT
[IP = 73.136.201.78] -
Posted From:United States
Name:  Ben Plowman
Like to receive our monthly newsletter?:  no
Year your RSD began?:  1997
Comments:

At age 27 I was just begining a career as an immigration inspector with U.S. immigration. My first posting was in St. Thomas Virgin Islands. Paradise. A tugboat arrived after midnight and my job was to check everyone in to the USA. Getting off I had no light and a concrete dock. My landing wasn't that bad, but 3 days later I awoke feeling as if someone took a sledgehammer to my calf. My search for medical help took me home to Houston, Texas. Months past before someone was able to give me a diagnosis. The doctor gave me a nerve block in my sympathetic nerve. It worked. I really didn't understand the speech the doctor gave me about how my whole life was about to be turned upside down. After a week the pain came back and over the next couple of years it spread up the leg down the other and into my arms. Mutliple surgeries, 2 spinal cord stimulators, even sympathectomy (cutting the nerve) on both legs and still no change. 20 years later I have fought this illness. While my body may be suffering I have not let my spirit be broken. Faith in Jesus and the Love of my family has sustained me. Yes, it is a horrible disease and you have to keep fighting, my words are you must have faith and Love no matter what your situation is.

- Ben Plowman, 47, Houston, Texas

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Message Number: 220 - Private Message

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Message Number: 219 - Wednesday, April 12, 2017 06:32:01 CDT
[IP = 94.0.159.72] -
Posted From:United Kingdom
Name:  Angela Ming
Like to receive our monthly newsletter?:  yes
Year your RSD began?:  1999
Comments:

I had a RTA in 1999 broke my neck, arm, ribs, on breaking my arm the bone severed the nerves, leaving me with RSD in this limb. The first year was horrendous even a draft would cause me pain, I have managed to learn to live with this after numerous medical interventions.

Today 18 years later, I now have it all through my body which I am finding it difficult to live with. I was on 180mg of MST x 3 times a day, Oramorph, Fentinel Patches plus other stupid meds. I had weaned myself off these as I accidently overdosed. I went back on them last year but again I have weaned myself off them. I take no pain meds now as I am too scared of the addiction.

This is a debilitating illness, I detest having it, especially now with it being everywhere. When I sit my skin is sore, when I move my bones ache, My legs and hands are continuosly cold although I myself are warm.

Any help would be greatly appreciated.

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Message Number: 218 - Private Message

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Message Number: 217 - Monday, March 20, 2017 14:28:33 CDT
[IP = 104.171.208.72] -
Posted From:
Name:  Rebecca Schlueter
Like to receive our monthly newsletter?:  yes
Year your RSD began?:  2014, my husband not me.
Comments:

My husbands RSD started 2/2014. He went from being active/healthy barge worker, hard manual labor. To now almost completely wheelchair/bedbound. I am trying to research any treatment options that might at least get his chronic pain under control. We are in middle TN and there is very limited options. Vanderbilt can not even help.

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Message Number: 216 - Saturday, March 4, 2017 05:19:37 CDT
[IP = 178.162.209.232] -
Posted From:Germany
Name:  ‚ÄčInga Peters
Like to receive our monthly newsletter?:  NO
Year your RSD began?:  1994
Comments:

Realy nice, thank you so much for all of this.

hv.inga.peters@versanet.de

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Message Number: 215 - Sunday, February 19, 2017 21:40:26 CDT
[IP = 107.205.65.64] -
Posted From:
Name:  Linda Jo
Like to receive our monthly newsletter?:  yes
Year your RSD began?:  2013
Comments:

Suffered hand injury at work as a piano accompanist. Have been unable to do that job due to the pain since the injury. Symptoms go from middle to pinkie fingers into the elbow; fine motor skills in those three fingers is VERY limited. Also limitation in movement in shoulder probably due to limited use of right hand (lack of use of hand means lack of use into shoulder which means weakness in the shoulder...).

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Message Number: 214 - Private Message

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Message Number: 213 - Private Message

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Message Number: 212 - Saturday, February 18, 2017 20:19:16 CDT
[IP = 108.238.234.16] -
Posted From:United States
Name:  Rebecca Badendick
Like to receive our monthly newsletter?:  Yes
Year your RSD began?:  2001
Comments:

I would like to subscribe to your newsletter. I have had RSD for many years, and yet, there is still very little known about this disease.

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