Sign GuestbookReturn to Home Page

Welcome to the CRPS/RSD Guestbook!


There are currently 231 messages.

hr

Message Number: 231 - Thursday, May 3, 2018 16:40:22 CDT
[IP = 69.247.58.187] -
Name:  Robyn Kyger
Like to receive our monthly newsletter?:  Yes
Year your RSD began?:  2017
Comments:

Very interested to keep informed on any treatments that are working for people with CRPS.

hr

Message Number: 230 - Private Message

hr

Message Number: 229 - Sunday, March 25, 2018 10:23:28 CDT
[IP = 173.174.6.167] -
Name:  Georgia Bargmann
Like to receive our monthly newsletter?:  yes
Year your RSD began?:  2013
Comments:

I have CRPS in my left calf /ankle/foot. I've used hydrocodone and kratom for the pain. Right now I'm trying CBD. If that doesn't help, and it doesn't seem to be helping, I'm going to explore ketamine infusions.

In 2013 I broke the left tibia in five places. After it was repaired I developed compartment syndrome, which damaged nerves in my leg and foot. After that I developed the CRPS.

hr

Message Number: 228 - Private Message

hr

Message Number: 227 - Private Message

hr

Message Number: 226 - Wednesday, November 15, 2017 08:22:04 CDT
[IP = 69.42.19.62] -
Name:  Julie
Like to receive our monthly newsletter?:  Yes
Year your RSD began?:  2011
Comments:

Please send your newsletter.

hr

Message Number: 225 - Tuesday, November 14, 2017 12:55:53 CDT
[IP = 4.28.70.34] -
Name:  Alan LePage
Like to receive our monthly newsletter?:  YES
Year your RSD began?:  2017
Comments:

I was just diagnosed with CRPS in Ocotber, 2017. I did not hav eany specifc eventthat I can point to that initiated this disease. My hand, arm are in constant agony. My employer has now reloeased me. So Im without income and a family to feed.

hr

Message Number: 224 - Wednesday, November 8, 2017 00:50:47 CDT
[IP = 50.48.86.138] -
Name:  Paul A. Santore, II
Like to receive our monthly newsletter?:  Yes
Year your RSD began?:  1996
Comments:

Diagnosed in May, 1996, after having an accident (1995) on the job (law enforcement officer) that crushed my left hand, broke left knee and suffered a concussion. After approximately a year, despite the numerous breaks in my left hand having healed and having been subjected to over 6 months of very aggressive physical therapy, the hand was much too painful to use. The hand had also turned a purplish black and became enormously swollen. Within 5 year's, I experienced these symptoms throughout my left side, head to toe. Having suffered with this condition and in extreme pain for 20 years, I wouldn't still have such the will to live as I do if it wasn't for my wonderfully loving and supportive family (of 8).

hr

Message Number: 223 - Private Message

hr

Message Number: 222 - Wednesday, October 18, 2017 08:56:34 CDT
[IP = 216.246.153.204] -
Name:  Christina Blair
Like to receive our monthly newsletter?:  Yes
Year your RSD began?:  2005 diagnosed 2015
Comments:

I began right arm pain in 1994 from a TFCC tear and tennis elbow. Debridements, elbow surgery and continuing heavy right hand work as office manager keep the pain increasing. Finallly, in 2014, I had left carpel tunnel surgery. During the recovery of that (the easiest surgery I've ever had!) relying on the right hand sent the CRPS out of control. Nerve pain, burning, sharp ice pick pain, bee stings in wrist all led to a surgery on the wrist to wrap the nerve. I worked six months part time trying and trying to get back to full time. It never happened. March 5, 2015 I was pulled from work, never to go back. I was diagnosed with CRPS. It was God's 6 foot tall, neon sign to me....STOP!! Only took 20 years to get the message! I was given SSDI in two months....unheard of in that short time frame. Now, I listen to what the arm tells me. Keep the range of motion going as it allows. Keep my spirits and dry humor in use daily. Some days, only crawling into bed will do. I get Stellate Ganglion blocks about every 6-8 weeks. They give me function and bring down the pain to a more reasonable (is there such a thing with CRPS?) level for about a month before slowing the intense burning, stabbing pain increases to sickening levels again. Retirement (dislike being disabled) suits me as I can say yes when it works and no when I have to behave. This journey is a day by day step. As long as it goes forward, I'm ok with the pain. My coping phrase, "it's only pain".

hr