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Welcome to the CRPS/RSD Guestbook!


There are currently 218 messages.

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Message Number: 218 - Private Message

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Message Number: 217 - Monday, March 20, 2017 14:28:33 CDT
[IP = 104.171.208.72] -
Posted From:
Name:  Rebecca Schlueter
Like to receive our monthly newsletter?:  yes
Year your RSD began?:  2014, my husband not me.
Comments:

My husbands RSD started 2/2014. He went from being active/healthy barge worker, hard manual labor. To now almost completely wheelchair/bedbound. I am trying to research any treatment options that might at least get his chronic pain under control. We are in middle TN and there is very limited options. Vanderbilt can not even help.

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Message Number: 216 - Saturday, March 4, 2017 05:19:37 CDT
[IP = 178.162.209.232] -
Posted From:Germany
Name:  ‚ÄčInga Peters
Like to receive our monthly newsletter?:  NO
Year your RSD began?:  1994
Comments:

Realy nice, thank you so much for all of this.

hv.inga.peters@versanet.de

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Message Number: 215 - Sunday, February 19, 2017 21:40:26 CDT
[IP = 107.205.65.64] -
Posted From:
Name:  Linda Jo
Like to receive our monthly newsletter?:  yes
Year your RSD began?:  2013
Comments:

Suffered hand injury at work as a piano accompanist. Have been unable to do that job due to the pain since the injury. Symptoms go from middle to pinkie fingers into the elbow; fine motor skills in those three fingers is VERY limited. Also limitation in movement in shoulder probably due to limited use of right hand (lack of use of hand means lack of use into shoulder which means weakness in the shoulder...).

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Message Number: 214 - Private Message

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Message Number: 213 - Private Message

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Message Number: 212 - Saturday, February 18, 2017 20:19:16 CDT
[IP = 108.238.234.16] -
Posted From:United States
Name:  Rebecca Badendick
Like to receive our monthly newsletter?:  Yes
Year your RSD began?:  2001
Comments:

I would like to subscribe to your newsletter. I have had RSD for many years, and yet, there is still very little known about this disease.

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Message Number: 211 - Saturday, February 18, 2017 11:09:08 CDT
[IP = 174.219.15.192] -
Posted From:United States
Name:  Lorraine OReilly
Like to receive our monthly newsletter?:  Yes
Year your RSD began?:  2014
Comments:

Hi, thank you for the great resources! I ended up with CRPS after aquilles tendon surgery! I am now getting ready for my third aquilles tendon surgery! Third times a charm I guess! Looking forward to receiving the great information!

Lorraine

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Message Number: 210 - Tuesday, February 7, 2017 07:03:31 CDT
[IP = 67.162.199.122] -
Posted From:United States
Name:  janece patrick
Like to receive our monthly newsletter?:  yes
Year your RSD began?:  2005
Comments:

I am thankful to know that I'm not alone. RSD is a difficult disorder to have but I refuse to let it keep me from enjoying my life!

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Message Number: 209 - Tuesday, January 31, 2017 14:48:47 CDT
[IP = 73.73.232.75] -
Posted From:United States
Name:  Lorraine (Lori) Trathen
Like to receive our monthly newsletter?:  Yes
Year your RSD began?:  2015
Comments:


Thank You so much for this web site and making me sane again. I am a surgical nurse and a private nurse for a Pain Management Physician. I had heard the term CRPS in clinic but never really knew what it meant as this physician did not treat CRPS patients. So when I was diagnosed with this syndrome, I had a lot of research to do. However, my situation is workman’s compensation, the initial trauma was from falling down a full flight of stairs, resulting in a sublexed patella that never when back into alignment. I walked on the leg in this state for 18 months waiting for my employer’s insurance company to take care of me. I got a lawyer and was able to have the first surgery (second trauma) on 3/15. This was a knee scope. The plan was to release the patellar tendon so the knee cap would track properly. It failed. The second surgery (third trauma) was a partial knee replacement. Two weeks later I was in the emergency room with my leg so swollen and such severe pain I was put on an I.V. pain drip that was not morphine, as morphine would not touch the pain. This was the beginning of my nightmare. Because I am a nurse and worked for a pain management physician, the employer’s insurance I.M.E. Physician stated that I was faking because I was well versed in the signs and symptoms of CRPS. This has resulted in absolutely no treatment. So I will now do what I was previously accused, and research this and hopefully will get some insight on how to manage this syndrome on my own in an effort to get my life back.

Thank You Again

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